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Offline spiderqueen noreen

Total Posts Last Post Last Seen Joined
765 06/08/08 15:53:35 06/28/08 19:26:35 07/24/02
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02/11/08
166

Noreens Oompapa

About Spiderspun

Spiderspun is a web site created in 2000 by an Alpha-1 patient (me), who links the blogs from other Alphas (via their permission or request) for the purpose of raising awareness and support about their genetic condition, Alpha-1 Antitrypsin Deficiency.

My Bio

Jak Sze Masz! I am an Artist and Designer by day, Avenger and Advocate by night,..and some weekends. I was diagnosed with Alpha-1 in 2000. I am lung-affected with the ZZ phenotype. My lung function is around 23%. I've had three Lung Volume Reduction surgeries due to the condition. I am a Bohemian mix of Czech, Polish, and German. I am inspired by the work of artist Alfons Mucha. I'm addicted to music in all genres, but my favorite is blues rock. I love life and every second that passes. I am looking forward to tomorrow.

My Blog

  1. Medicare & Pulm Rehab

    06/30/08 16:30:34 | 0 Comments

    Medicare will now cover Pulmonary Rehabilitation. image American Lung Association Commends U.S. House of Representatives for Passage of Pulmonary and Cardiac Rehabilitation Act Thursday, June 26, 2008

    Washington, D.C., (June 2008) - The American Lung Association commends and thanks the U.S. House of Representatives for its passage...
  2. Piss off a 5th grader

    06/27/08 13:33:06 | 0 Comments

    Egads. When you were a kid, did you ever hear the saying from your parents,"Well, if your friends decided it was a good idea to jump off a bridge, would you jump off too?" I cannot count the number of forwarded emails I recieve from adults that are just this crazy. It is an epidemic. The latest is that our new $1 U.S. minted coin should be boycotted because it doesn't say the words "In God We Trust". Okay, I bet if you asked a 5th grader, they would tell you...
  3. The earth moved

    06/10/08 17:32:23 | 0 Comments

    There is nothing more powerful than watching Nature in motion. At least that is my opinion after this weekend's storm. It has been a historic sight. I watched streets turn into moving rivers. Maybe Lar and I should buy a pair of life-vests for the next round of storms. Some of my family weren't so lucky. Sewer-water came gushing up into their basements. It's going to be a hard week of cleaning up for them. Back in the 1940's, my mother lost her 9 year old brother due to rushing...

My Friends

spiderqueen noreen has 10 friend(s)